Get Your ZZZ's

OK, I am going to let a bit more of my life out of the bag here.

Like you, we are proud of all of our five children. Like all kids, each one is very unique. Here is our youngest daughter, Leah, when she was playing softball in high school. Leah is very special to us for several reasons.

Life for Leah has been an everyday battle since the summer prior to the 8th grade. Leah was diagnosed with Narcolepsy with severe Cataplexy. She had all symptoms in spades! We took her to see some of the finest doctors in the world at Stanford University Sleep Clinic in California. Life has been struggle for Leah in so many ways to stay awake during the day and get restful sleep during the night. Some side effects to this autoimmune disorder can be socially devastating. Narcolepsy and its symptoms literally turned Leahs world upside down more than 8 years ago. Nothing is easy!

This was extremely difficult to deal with in the early years of discovery as Leah’s Narcolepsy destroyed the “occasional” (haha) harmony of our family. I cannot begin to tell you the grief, anger, sorrow and despair this triggered in me and others in our family.

The road is still tough but it is better in most ways now. God has been VERY good to us all.

Leah, now nearly 20, IS a fighter! She is now attending community college and started her own craft business called “Get Your ZZZ’s” from our home. Leah makes Scrabble Tile Necklaces to stay awake during the day. There is a million different designs, actually whatever you can think of mounted to a tile.

     
  

Severe Narcolepsy usually sidelines a person from interaction with the outside world but Leah has fought to stay active in ways that are very unusual.

I love the photo of her playing softball in high school. We could see evidence of the will to compete even when Narcolepsy tried to hold her down. Again, God has been VERY good to you Leah!

Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Proverbs 3:5-6
May God bless you in special ways ... today!

NikonSniper Steve (Love, Dad)